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Current opportunities

Toddler Working Group

About the project

Caring for a child with type 1 diabetes is challenging, and perhaps even more so when the child is a toddler. Mindful of this, and considering the unique needs of families caring for the youngest children with type 1 diabetes, a team in the Perth Children’s Hospital’s (PCH) Diabetes Clinic is currently working to improve services and resources for families with toddlers. We would like to invite parents of toddlers to be part of this group to ensure we are meeting the needs of our type 1 families.

How you can be involved?

The first aim of the group is to survey parents of all toddlers in the clinic to enable us to understand their needs and identify any gaps in the current care they are receiving - in terms of resources, education materials, interactions with their clinical team etc. We would like a couple of parents to review this survey and provide feedback which can be done via email.

The next aim is the development of the resources. We would like to partner with parents to develop resources for nutrition, managing pumps, sick day management etc. This can be done at home by email, phone or virtual meetings like Zoom or similar.

The final aim is to coordinate parent sessions, mentors and get-togethers. This will be done in consultation with parents.

No special skills are required and you can choose to be involved in some or all of the aims.

To register your interest, please email diabetes.research@health.wa.gov.au


Supporting players with T1D and their coaches in sport: developing resources to educate and empower

About the project

Physical activity is important for people living with type 1 diabetes (T1D) as it prevents diabetes-related complications later in life and promotes positive mental health. However, fitness levels for young people with T1D are overall lower than in the non-diabetic population. Our research team explored the reasons for this in focus groups with adolescents and young adults (AYAs) living with T1D. During the focus groups, the lack of awareness and understanding of diabetes among sports coaches was raised as a re-occurring challenge when participating in sport.

This project aims to develop evidence-based resources to upskill coaches on T1D to improve their knowledge, understanding and confidence in coaching young people with T1D. Similarly, we aim to identify whether a resource can be developed for young people with T1D, to empower them to participate in sport. The resources will be developed in collaboration with young people with diabetes, parents, sports coaches, health care professionals and researchers.

How you can be involved?

We are looking for two parents and two adolescents to help the research team with the following activities:

  • Read and give feedback on survey and interview questions that will be asked of young people, parents and coaches. (1-2hrs)
  • Review information sheets for the study to make sure they are clear and easy to understand. (1hr)
  • Review the resources as they are being developed and give feedback on the content. (3-4hrs spread out over the course of the study).

This can be done at home by email, phone or virtual meetings like Zoom or similar. No special skills required.

To register your interest, please email diabetes.research@health.wa.gov.au


What factors influence the participation and non-participation of young people with type 1 diabetes and their parents in research?  

About the project

There are many reasons why people choose whether to participate in research and we would like to investigate these reasons for people with type 1 diabetes (T1D) in Western Australia. The project seeks to explore the knowledge, attitudes, expectations and experiences of young people with T1D and their families about participation in research. We will do this by holding focus groups with young people with T1D aged 13-25 years, and parents of children with T1D. We would like to hear from all member of the type 1 community, whether they have participated in research or not. By investigating the type 1 community’s understandings, experience and expectations of research, we aim to ensure that our research is relevant and acceptable to the diabetes community.

How you can be involved?

We are looking for two parents and two adolescents to be help the research team with the following activities.

  • Read and give feedback on focus group questions that will be asked of young people, and parents. (1-2hrs)
  • Review information sheets for the study to make sure they are clear and easy to understand. (1hr)

This can be done at home by email, phone or virtual meetings like Zoom or similar. No special skills required.

To register your interest, please email diabetes.research@health.wa.gov.au