How did you feel when Lucy was diagnosed with type 1 diabetes?
At the initial time of diagnosis, we were overwhelmed with sadness. Our little girl's life was going to change forever. After a few days in hospital, we had accepted what life was now going to be like and took on a positive approach - we decided we were going to do the best we possibly could for our daughter.
What is the hardest part for you, as a parent?
Trying to have perfect blood glucose levels (BGL), however knowing it isn't possible as every single day is different. Letting Lucy do whatever the other kids are doing (i.e. eating cake etc.) and knowing what will happen to her BGL afterwards. When she gets sick of it, when she doesn't want injections, doesn't want her monitor, and doesn't want finger pricks - it is hard to watch your child go through hard times.
Do you find it difficult managing Lucy's insulin and BGL when she's at school?
Her school and teacher, are very supportive, and well aware of her needs, they are very capable in their management. As we have the Dexcom, it does make things a little less stressful, as we can all monitor her levels, and the alarms work well to manage her lows. She doesn't, at this stage, require injections whilst at school, unless I need to do a correction for high levels.
T1D: Our Lucy
T1D: Our Lucy
What are the challenges and/or frustrations you and your family face in relation to diabetes?
As it is all still relatively new, we are still coming to terms with the change in lifestyle, and new routines. What I worry about is the future for Lucy - I hope she doesn't get left out of birthday parties, or sleep overs, because people are scared or don't understand. But in saying that, we also worry about leaving her in someone else's care, when prior to diagnosis, she was always able to be left. I worry about her not having carefree teenage years, as her diabetes will always be something that has to be in the back of her mind.
Have you had much response from family and friends on your video?
As we live in a country town, when Lucy was flown out by the Royal Flying Doctors word got around very quickly, and then there were lots of questions. Everyone was trying to get a bit of an understanding and wanted to let us know they care. There is always some confusion between type 1 and type 2 diabetes, as well as just a general lack of understanding of what having diabetes involves.
Lucy and her Dad decided to make the video to let everyone know what was happening and to give them an insight into what Lucy is facing.
We've had so many responses about how great the video is, parents showing their children, teachers showing their class, grown men getting teary! The more people understand, the better off we are, and, the more people that see the video, the more people in our town that will be on the lookout for our little girl.
On behalf of the Childrens Diabetes Centre and PMH, we'd like to thank the Newton family for sharing their story.