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FACTORS STUDY - FACTORS INFLUENCING PARTICIPATION IN RESEARCH

Factors influence the participation and non-participation of young people with type 1 diabetes and their parents in research.

At the Children’s Diabetes Centre, we are committed to improving the health and wellbeing of young people living with type 1 diabetes through evidence-based research, and we recognise that we can learn a lot from our families.

We acknowledge that there are many reasons as to why people choose whether or not to participate in research and we would like to explore if these are the same for those living with type 1 diabetes in Western Australia. The project seeks to explore the knowledge, attitudes, expectations and experiences of young people with type 1 diabetes and their parents about participation in research.

Who can participate?

Adolescents and young adults aged 13-25 years with a type 1 diabetes diagnosis and parents of adolescents and young adults with type 1 diabetes. Separate focus groups will be conducted for adolescents, young adults and parents.

Needing to recruit about 30 participants, we would like those who have and have not participated in research, doesn’t matter what research – could be clinical, questionnaires or surveys etc.

What does participation involve?

Online focus group will be conducted with small groups of adolescents, young adults and parents.

How can I find out more?

Participant information sheet and Parent information sheet

If you have any questions or would like to participate, please contact Alison Roberts via alison.roberts@health.wa.gov.au or 0423 209 349.